Heath records & Feelings
Jul. 29th, 2024 11:24 am( Read more... )
I've had a couple housesitters fall through for my yearly pagany thing in a couple weekends. Mom had mentioned being willing to housesit so I finally communicated with her about it and she'll do it. Lot of feelings about that; I don't think she knew how bad it was, and she seemed worried. It is really scary to show vulnerability to mom. She's... not been great in the comments she's made about disabled friends in the past, sometimes, and she generally believes that everything can be exercised away. In some ways, in our family's bodies, that's true; I suspect our genetics have a kind of breakpoint at something like 20 - 25 hours of hard labour per week below which systems just don't function right. It wouldn't have been a selection issue for most of human history. But. Not for this.
This is also the first time a landmark in time has come up where I specifically remember having this whatever-it-is last time; I remember not being able to stand up around the fire last time. The experience was fine, it wasn't ruined by it, but I guess this has been going on awhile. Because one of the symptoms is a loss of my normal experience of location-in-time it takes something like this to really bring it home.
Hoping I can manage this trip; it'll be a quick down and back for the event, with Tucker driving and doing most of the camping packing. I imagine there'll be several days of recovery afterwards. Still looking forward to it.
FB copy/paste about it: Last year about this time I remember sitting on the ground by the fire, surrounded by friends during ritual, and not being able to stand up. I think I hid it pretty well then and I still do when my body just won't move.
I've been thinking a lot lately about this instinct to cover it up, to just smile and keep doing whatever I was doing while sitting for awhile as I wait for control of my body to kick in again. Aside from a lot of rest and a very gentle life to build up my capacity it is my strongest method for doing anything: have someone watch and I'll try very hard not to look vulnerable.
I don't generally think of myself as a prey animal and I'm not sure if that's it. Maybe it's that I don't trust in people's responses to be helpful? If I can't move my legs there's not much sense in having someone help me to my feet, or adding the complication of having to comfort them.
It also means I never go to the hospital for one of them, since when I can't move I can't get there on my own, and if I go in an ambulence I couldn't get home anyway. As I apply for disability I wonder if that'll damage my case.
Luckily my mind doesn't work well these days so I don't think about that part much. It's mostly just garden and cats in here.
I've had a couple housesitters fall through for my yearly pagany thing in a couple weekends. Mom had mentioned being willing to housesit so I finally communicated with her about it and she'll do it. Lot of feelings about that; I don't think she knew how bad it was, and she seemed worried. It is really scary to show vulnerability to mom. She's... not been great in the comments she's made about disabled friends in the past, sometimes, and she generally believes that everything can be exercised away. In some ways, in our family's bodies, that's true; I suspect our genetics have a kind of breakpoint at something like 20 - 25 hours of hard labour per week below which systems just don't function right. It wouldn't have been a selection issue for most of human history. But. Not for this.
This is also the first time a landmark in time has come up where I specifically remember having this whatever-it-is last time; I remember not being able to stand up around the fire last time. The experience was fine, it wasn't ruined by it, but I guess this has been going on awhile. Because one of the symptoms is a loss of my normal experience of location-in-time it takes something like this to really bring it home.
Hoping I can manage this trip; it'll be a quick down and back for the event, with Tucker driving and doing most of the camping packing. I imagine there'll be several days of recovery afterwards. Still looking forward to it.
FB copy/paste about it: Last year about this time I remember sitting on the ground by the fire, surrounded by friends during ritual, and not being able to stand up. I think I hid it pretty well then and I still do when my body just won't move.
I've been thinking a lot lately about this instinct to cover it up, to just smile and keep doing whatever I was doing while sitting for awhile as I wait for control of my body to kick in again. Aside from a lot of rest and a very gentle life to build up my capacity it is my strongest method for doing anything: have someone watch and I'll try very hard not to look vulnerable.
I don't generally think of myself as a prey animal and I'm not sure if that's it. Maybe it's that I don't trust in people's responses to be helpful? If I can't move my legs there's not much sense in having someone help me to my feet, or adding the complication of having to comfort them.
It also means I never go to the hospital for one of them, since when I can't move I can't get there on my own, and if I go in an ambulence I couldn't get home anyway. As I apply for disability I wonder if that'll damage my case.
Luckily my mind doesn't work well these days so I don't think about that part much. It's mostly just garden and cats in here.