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The experience I associate the most strongly with autism is the simultaneous and somehow not contradictory dawning realizations that most of the people around me are in favour of something I find horrific and in fact consider me immoral and horrific for not agreeing with them; and that I'm probably just misunderstanding and they would never do the thing because they're actually talking about something quite different.

However, I do not think this is a universally autistic experience.
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7. What are your sensory differences or challenges? What hypersensitivities and hyposensitivities do you have?

Vision:

It requires deliberate focus to "turn on" my eyes, if I'm thinking, listening to something, or otherwise distracted I'm not aware of visual input.

I have no "visual memory" so I can't look at a colour or shape and then a different colour or shape and tell you if they were the same. If I take a moment to abstractly describe the visual information ("teal blue" or "a square") I can compare that, though.

I'm very poor at recognising faces, and often can't follow movies because the actors look too similar.

Certain colours and intensities of light feel appropriate at certain times, and not at others. I've arranged the rooms in my house to have a very bright, daylight option and a dim, yellow option. Sometimes light is far too bright, or dim areas are difficult to think in, so I alter my environment as required. I find it hard to process visual information in spaces that are too dim, even if I can technically see alright.

Being in a dark room helps me relax

There are a specific few shades of colour that make me physically nauseous.

Scent:

I'm hypersensitive to scent.

Certain scents, or too many scents of certain categories (especially toiletries and other personal scents like laundry products, perfumes, and "room scent" devices) can cause intense pain, nausea, and overwhelm.

Taking transit late in the evening especially, I'll often have to get off the bus or train car and take fifteen or twenty minutes outside so I don't throw up. In this case the scent is probably compounded by the noise of vehicles and people, though I'm not sure.

I understand my environment significantly by scent; I ID many plants by scent including trees like cottonwoods, just by walking under them; I quickly learn to associate certain body scents with certain emotions in my partners; I can often tell the weather by a little bit of scent coming in through a cracked window; I know when it's time to flip or stir food from across the room in part by a change in scent. I used to always ask "what's that smell" but I have learned that often other people can't detect the scents I'm picking up on.

Sound:

I have trouble processing speech. Not only am I less likely to understand speech when there's background noise, but I also process speech more slowly than I do text.

Continuous exposure to noise often feels painful to me. Right now I am sitting in an office with central heating/cooling, and the sound of the air coming into the room through a duct is sitting at a 3 or 4 on the pain scale. I am in the office twice a week and have this reaction roughly once a week. In my home I use wood heat and baseboards, so this sort of low continuous noise from heating doesn't impact me. If the noise is more varied, such as the sound of a crowd when we're all outside, it often has less effect on me.

Sound and scent often combine to overwhelm me or cause me extra discomfort: in an unscented environment I can handle more noise; in a quiet environment the scent may bother me a little less.

Sometimes repetitive sounds are very soothing to me; I'll sometimes leave a song on repeat for a couple weeks and I quite enjoy that. I also like certain background noises, like the sound of my geese honking to each other. I distinguish here between repetitive and continuous.

I have some level of synesthesia, where certain sounds map as sensation in certain muscles or parts of my body.

Touch:

I am very, very sensitive to touch.

My skin is often disablingly reactive to stimulus. When I was younger it didn't occur to me that "the princess and the pea" was allegory; it is my daily experience. If a bit of sand or a crumb gets into my bed I get extremely uncomfortable and can't sleep. Certain clothing textures (too smooth; too cool; too compressive) or compression on any area of my body, often including waistbands or sock ankles, causes burning wriggling awful feelings.

From the time I was 3 at least I've had an aversion to wearing clothing because of my textural and compression issues. It's only as a significantly older adult, in my thirties, that I've found styles and fabrics that can recede into the background of my awareness such that I won't take them off at the earliest opportunity.

I enjoy a variety of textures, both in one meal and in general across cultural norms. I especially appreciate crunchy, slippery, slimy, gummy, and chewy textures and will seek them out. There are a couple textures I can't handle and will gag if forced to eat something that contains that texture (processed deli ham is one of the few). I find textures very stimmy, engaging, and relaxing.

I experience even everyday cold, either touching cold objects or being surrounded by cooler air, as pain.

Sometimes very light touches also feel very unpleasant. Deep touch, or very firm deep massage, is often enjoyable.

The foam from toothpaste in my mouth, even far forward in my mouth, is extremely aversive and I use significantly less than the suggested amount of toothpaste to avoid it. When I have had too much other sensory stimuli recently it will cause me to throw up, so I use other solutions for toothbrushing at those times.

Taste:

I'm definitely extra sensitive to taste.

Taste is a tremendous playground for me, and a channel for information. I train my palate and often try to deconstruct flavours to their individual components; this overlaps with my food and plant hobbies. I seek out unusual flavours (and tastes) and will subject myself repeatedly to tastes I don't enjoy because they're interesting. I will often notice subtle variations in flavour, and I use taste as a tool to understand the world (how alkaline something is; how ripe a seed is)

Taste can also be overwheming for me; I use children's toothpaste and avoid other "sharp" flavours outside of voluntary, controlled situations (so I may enjoy menthol in a pepperment candy in the right mood, but I can't handle it every evening when I brush my teeth).

Proprioception:

I consider myself to have an underdeveloped sense of proprioception.

I can't gauge force from my body well. I often pull too softly on doors or lids or other parts of my interactive environment, because I'm leaving a significant buffer so I don't break them.

I don't have a good sense of where my body is in space. I prefer to be touching a wall, a tree, or some other stable object around me as a reference point to be sure of where I am: whether I'm properly upright, whether I'm swaying on my feet or not. If I am standing and I close my eyes for a minute without having a hand on the wall and without having spent focus on placing myself in space, I am somewhat likely to stumble. On the other hand I really enjoy careful, deliberate placement of my body in space so I can study it, as in slower yoga.

The times my body feels least unpleasant are when my muscles have just been well-exercised (but not over-exercised) and have a pleasant ache so I can feel my entire body as present.

Pain:

I believe I respond differently to different kinds of pain than most people do: cold reads as pain to me, but a burn or a bruise can often feel like information rather than a real negative sensation. This plays out especially strongly in my BDSM interactions, where I enjoy experimenting with various traditionally-painful sensations as interesting information.

On the other hand, pain like continuous noise or cold, which other people don't seem to experience, I react very strongly to.
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6. What are your interests? Do they differ from other people’s interests in intensity and scope? If so, in what way? Are you perfectionistic?

My entire life is devoted to plants, gardening, and agriculture. This has shaped everything about me, it is not just a hobby; in this way it is very different from how neurotypical people approach their hobby of gardening. I research my varieties and breed them. I spend more than all of my disposable income on plants and having the correct environment for plants. I spent multiple hours most days thinking about and working on this interest, and have since I was 5 years old. I know latin names and several common names for many plants, though sometimes I need to switch "libraries" and refresh myself on, say, pacific northwest ornamentals as opposed to northern commercial species or whatnot. So yes, I’d say this is more intense than most people’s interests in anything, and has a wider scope where most people limit the scope of their interests to knowing a couple things about their subject.

I find new hobbies by how they relate to plants, such as: brewing or canning to preserve extra stuff from my garden, pottery to make plates appropriate to eat my food off, raising animals to provide me with nutrition and disturbance agents for my garden. In essence the scope of my interest gets wider to encompass more and more facets of how plants exist in the world and their relationship to people, other animals, and other environmental functions.

I enjoy plants/gardening/ecosystems as a hobby because it’s impossible to be limited by perfectionism around it: each system is a little different, and we can’t know every myriad way that the systems interact with themselves, so there is no perfect way to do things. There is only doing something, learning from it, and doing better next time: it means that when doing this hobby I’m unable to inhabit the limiting gross feeling of perfectionism and instead fully inhabit my curiosity, which feels wonderful.

People are also an interest of mine, both generally and occasional specific people. I like figuring out how social structures work and play out; I like figuring out what cues I need to understand what’s going on with people. I think the way each individual is different from each other individual is really beautiful and I want to experience many of those individuals, and experience that beauty, I guess in the way other people look at flowers or read books. I’m more careful with this interest since people are often unsafe either physically or emotionally, or they don’t like being the object of sustained attention sometimes, or they mistake my sustained attention for wanting a romantic commitment. I am both more intellectual about liking people than most neurotypical people are, and much much much more intense about it.

I used to be very perfectionistic, and sometimes still default to that state, but I make a concerted effort not to let it limit me. For instance, my perfectionism meant it was hard for me to learn rock climbing because I didn't want anyone to see me doing it imperfectly, so I spent several months learning in situations where only very trusted friends were present so that when I finally did it in the public space of a busy climbing gym I wasn't ashamed or embarrassed. But opportunities like that are rare, and now I try to just do things, even in public, even if I'll be less than perfect at them. I developed a system with a former employer for him to communicate how perfectionistic I should be, this job might want "80% perfect" while this other job might want "95% perfect" and that as an incredibly useful accommodation for me.
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5. What is your experience with routine? How do you feel about changes and transitions? How do you react if someone alters your routine unexpectedly? Do you ask many questions if it is one of your interests? Do you regularly eat the same food or wear the same clothes?

I have tremendous emotional trouble with changes if I don’t know they are coming. Being able to anticipate them soothes this a great deal. This applies to both big changes like moves or relationship shifts and small changes like cancelling a visit or being given something different-than-expected to eat. I used to think my partners were neglectful or abusive because of the huge volume of pain and distress I felt when plans were altered, but I've since realized that is my own outsized reaction to changes. When I feel I have some control over the change of a plan, or know exactly how it's changing, I am far less distressed. So changing a plan ("I need to cancel tonight") is really difficult, but knowing why ("I'm not feeling like company and need to cancel tonight") and what happens to that plan after it disappears ("so let's skip this hangout" or "let's reschedule for next week") and especially being given some say in the change ("do you have a preference between rescheduling for this week and just doing it some other time") allows me to regulate (finally, after about 25 years of intensive practice). On the other hand I very much welcome the changes of the seasons, which I know will occur eventually, no one has any control over, but which are predictable and patterned. Note that I will react poorly to a change in planned activities even if the change is better for me-- if I was dreading a social event, but it was cancelled, I'd probably still need a bunch of time to recover from that shift instead of being able to smoothly enjoy the freedom of having that time to myself.

I cannot do a regular routine. When something happens weekly or daily it begins to feel like a demand, and both my mind and body act as though there is a physical force-field pushing me away from doing that thing even if I would like to do it. I have finally learned, after 30-plus years, to brush my teeth regularly if I don't think about it and do it as an auxiliary to the rest of my evening stuff (watering plants, dishwasher, watching youtube) but having written this I will definitely struggle the next couple days since those simultaneous activities "invisibilized" it and this writing makes it visible again. I struggle with the fact that work, classes, or social events happen regularly (as described extensively in the relationships section). However, I do like predictability and pattern, so knowing that I will see a partner on average two days a week, but keeping open which days those are, is extremely soothing to me. So I walk a delicate line between wanting some structure, but not enough structure to trigger demand avoidance or a meltdown if the structure breaks down unexpectedly.

I buy many copies of the same pairs of pants, shirts, socks etc at the same time so they’re all similar and I don’t need to think about buying them again and I know they’ll work for my body, I hate when my favourite cut of jeans is changed and I learned to sew so I don't need to accept changes to my favourite t-shirt pattern. However, I also keep a wide range of potential outfits as an aid to conveying a social persona, so that I can communicate with people who might wish to approach me depending on the situation (a slightly quirky outfit may inoculate people to my atypical social behaviour so they find it charming instead of shocking, where a very typical outfit may allow me to blend into the background). I did go through a period where I was unable to wear the same clothes, and had to sew a new outfit every day, but luckily that was short-lived.

I have learned that when a transition occurs that I was not expecting, instead of melting down I can attempt to engage with curiosity. Asking many questions at this time helps me to stabilize and feel more secure in the change or transition, and it also buys me time to regulate before going on to do the thing that changed. In some ways the whole of my world is a single context, and a change to one part of the context "tears" that part out of context, and I need information and integration time to fit the new information into my whole.

As a small example of how I manage transitions, I have a partner with whom I talk on the phone often. We used to have a great deal of trouble ending the conversations, and I'd feel upset after the transition from talking with him to not-talking with him and be nonfunctional for up to an hour or two. I asked him to give me a heads up five minutes before the call would end, which he now does, and that allows me to anticipate the transition and therefore not to be upset by it. After several years of this, sometimes I can even end the conversation without a heads-up, because I know that if I'm struggling with the idea of ending the call, I can ask for the extra five minutes and he'll give it to me. However, if I were to have an extended conversation with someone else, the end of the call would probably still disregulate me.

Another example of how difficulty with transitions impacts my social life is in relationship visits. I often have a partner visit me for a weekend or a full week, since we mostly are long distance, and it takes me from one to three days to fully process the transition from someone being present to someone being far away once they arrive, and again after they leave. Knowing I'm going to struggle with the transition after they leave, I often have a day or two before they go where I also struggle. These struggles look like loss of executive function, inability to regulate emotions, feelings of distress, anxiety, and emotional pain. They exist regardless of whether I'd like to see the partner more than I currently see them-- it is the transition that I struggle with.

A transition with a choice is always easier on me then one without. I spend so much time and energy managing my reaction to demands that when a surprise demand is given to me it can harm those other coping stretegies and everything falls apart. If instead I am given a choice, I am faced with handling the transition but not so much an externally imposed demand.

I have certain flavours that I like regularly (a specific brand of hot pepper) but am unable to eat the same flavours and textures for more than one meal in a row or even sometimes for more than a couple bites in a row. I manage this by making food with lots of texture and flavour, and can get around it by drinking very bland meal drinks that don't register as having either flavour or texture. Eating an entire bowl of oatmeal without putting crunchy sugar or cool liquid milk in it is out of reach for me, for instance.

It's very difficult for me to transition my focus; if I'm engaged in an activity or thought and need to stop and engage in a different activity or thought I will be slow to do so, my memory won't work well, and I'll want to continue the thing I was doing previously. The exception is if one activity or thought naturally leads into another (thinking about red cedars -> thinking about the ice age, or latin names)

I'm not sure what is meant by "do you ask many questions if it is one of your interests"

- If a change in routine occurs I will ask many questions regardless of one of my interests, as described above
-If someone is going to give me any sort of answers about one of my interests, if it's in any way socially appropriate I will ask as many questions as possible about the shared interest, but that doesn't seem to fit into the general thrust of the rest of this question
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4. Do you engage in repetitive speech (also see: Movie talk), repetitive motor movements (self-stimulatory behaviour or stims), or the repetitive use of objects such as lining up toys or organizing items by colour?

When I need to regulate I will often put one to three songs on repeat and listen or sing along for up to a couple weeks, except when sleeping or socially inappropriate

I have always liked rocking chairs and swingsets for repetitive movements, the feeling of my weight shifting slightly and regularly (proprioception) is grounding and soothing and helps bring me into my body. Pacing is a lesser version of this but more accessible in various situations. I have a poor sense of proprioception if I don't stim this way regularly, or if I don't touch my environment often (like touching a wall when I walk down a hallway)

I sort information about my seeds in a spreadsheet, and I’ll groom and clean that database to relax -- this isn't lining up toys or organizing items by colour, instead it's creating a way to organize items by many different qualities. I plan my garden in similar ways, by various attributes. I like collecting categories of plants, for instance, I collected a lot of scented geraniums at one point, I collect types of tomatoes and grain corn currently. It gives me a sense of fitting properly into the world to compare similar attributes between different objects, including comparing attributes like social behaviour between individuals and groups.

I have a set of repetitive whole-body movements I enjoy, visually sort of like dancing, and I also enjoy structured repetitive whole-body series of movements I can do again and again exactly the same like Bikram’s hot yoga (which uses the same series each time, unlike other yoga practices)

I use repetitive muscle movements in running as a stim, but because the sensation from the stim is so all-encompassing I need a treadmill; if I try to run on the sidewalk I can't manage proprioception, muscle sensation, and direction at the same time and will get lost or not be able to navigate obstacles well.

I use flavour as a stim. I require variety in flavour most of the time, instead of repetition, so I have a large assortment of pickles and condiments that I can use to change the flavour of successive bites. It's hard for me to eat without the variety of different condiments, flavours, and textures. There is a particular brand of hot pepper I eat to stim, the crunch and salt and burn are extremely satisfying; I try to limit its use since it's not great for my stomach. Sometimes I use very intense candy, like black salted licorice or sour candies or slimy candies like turkish delight or konjak, as a stim.

I had a baby blanket I'd chew on the corner of as a stim until I was 6, when mom took it away.
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Shoot, a bunch of these sub-questions got answered in the previous question.3. What differences in relationships do you experience?

Their examples include: 3a) How well have you managed relationships, particularly friendships, throughout your lifetime (as a child, teen, and currently)? 3b) Initiating conversations 3c) Taking things literally 3d) Conversational timing 3e) Reduced sharing of interests or emotions 3f) Interrupting 3g) Not liking to be touched 3h) Challenges with small talk 3i) Developing and maintaining friends or relationships 3j) Difficulty adjusting behaviour to social contexts 3k) Preferring solitary activity

3a) I think I've managed my relationships pretty well, but it's required a lot of very intensive energy and active management to review all the expected parts of relationships, figure out what's a good fit for me and retain those, jettison the parts that don't fit, and then find people who are a good match for what I want. I don't have many continuous enduring friendships though, they're generally full of long spaces without contact.

My romantic relationships don't look remotely like the relationships people from my culture have, to the point that they are not legally or socially acknowledged in most to many cases. I have multiple partners, I prefer a great deal of autonomy over what I do with my body and living space and finances, I don't tend to engage in standard relationship activities.

I manage any emotionally intimate relationships (close friends or romantic partners) very differently from most dominant culture people. I require clarity, and at this point in my life that means clarity either through verbal agreement or several rounds of repetitive behaviour, on which of the many different aspects of relationship I’ll be engaging in with folks (like, how often do we communicate, what method do we use to communicate, what topics are ok, who initiates and how do we stop initiating, will there be physical contact, will there be sex, what happens in edge cases, what happens when there’s strong emotion, how long-lasting will the connection be). In general I assume that any interaction, even a friendly interaction, is not “part of a friendship” unless a pattern of behaviour or verbal agreement has been established.

Because I'm not able to follow through on periodic or weekly commitments due to demand avoidance, I manage friendships through attending activities or group events where I'm not required to attend on a regular schedule (no demand to attend) and through situations where I'm in contact with people incidentally (volunteering, sometimes work).

As I child I played with the other weird kids. We were all weird together, so there was no one normal way to exist, which made a comfortable environment for me.

As a teen I hung out with the other weird kids. Friends were friends because of proximity, not really because of agreements.

3b) I have a lot of friends who are prone to feeling rejected if they need to initiate conversations. With those friends I’ll deliberately reach out to start conversations. These are folks I’ve known a long time, and I do this as a service to the friendship sometimes. I think sometimes these friendships are an ease to my demand avoidance: if someone considers that I've already rejected them because of their own psychological stuff, there's no demand to keep in contact, so I can keep in contact without that pressure. If someone expects me to initiate conversations regularly I have a lot more trouble.

I'm comfortable initiating conversations with friends if I feel they're interested or not busy, though I'm not great at the typical pleasantries before diving into conversation. One of the tools I use to manage my social relationships is to select friends who are compatible with my conversation style though, so they're not offended by how I initiate.

When I can't carefully select the people I'm relating with, such as at work, I have more trouble initiating conversation because I can't think of any overlapping areas of interest to discuss.

With new contacts I try to keep the number of conversational intitiations symmetrical, so if they start one then I’ll start one a little later. I don’t want to initiate too much or too little and this rule of thumb helps that; it also helps me notice how often they initiate and helps me create expectations around frequency of contact.

3c) I don't take sarcasm literally, but I do struggle with wanting the literal meaning of words to line up with a situation, especially with rules. Currently at work I'm struggling significantly with work hours, where I was told to "show up on time, don't be late, and you can't move your lunch hour or come in early and leave early" but people do that sort of thing all the time. When I asked about it I was told "you can't do it, but you can a little, but not much" and I could tell they were trying hard to unpack and provide the actual literal meaning of the hours for me but they were unable to do so. I would be much more comfortable if they could give me literal descriptions of what's ok, for instance "you can move your lunch hour by up to an hour once every two weeks, and don't be more than a total of twenty minutes late across a two week period" or some other metrics. Instead I want to take their "always be exactly on time" literally and I know I'm not supposed to, but don't know how to extrapolate the true meaning.

3d) I'm not sure what's meant my conversational timing; I prefer overlapping speech patterns where sometimes both people are talking at once. Talking over someone to agree or add nuance in these situations is not meant to indicate they should stop talking and let me talk, but instead is an encouragement for them to keep talking and a signal that I'm interested. I think this is cultural, though, from some of my Jewish background. It's not considered polite in many of my circles though and sometimes I just don't talk because I don't want people to feel like my overlapping style means I'm not interested (quite the opposite!)

In a group of many people I have trouble knowing when to speak up, and often feel like I don't know how to slide my contribution in. I also have trouble processing verbal speech, and so in a group verbal situation I often don't think of something to say until much later, when I'm perusing the extensive notes I need to take in order to both process and remember verbal situations.

3e) I don't understand what is meant by "reduced sharing of interests or emotions". I don't have many interests in common with people, or at least I don't approach my interests in a common way - for instance, I garden, but I garden to experiment with genetic or growing methodologies and not to grow a large pretty cabbage or rose. Sometimes I find people who are equally interested in something similar to an interest of mine and we have a very enjoyable time talking about it. Because I do not have a typical life plan, I do not talk about or have interest in: how much I hate my husband, the kids and their hockey games, my upcoming wedding, my friends' upcoming weddings, how trapped I feel in my marriage, how bad I feel now that my kids are grown up, and drinking. That feels like a significant reduced sharing of interests at my current workplace, though it hasn't in other, more carefully selected workplaces.

People do not care what my emotions are, and they do not approve when they know, so I do not share them widely with people except close friends. I have no way of knowing whether other people share their emotions with me more than they do with other people, because I have no way of figuring out their baseline.

3f) (see conversational timing)

3g) Touching, like eye contact, is a tremendous, deep, and intense source of communication for me. Because it conveys so much information I only like to be touched by people I trust; the incoming volume of information means I can't process much else at the same time so I'm vulnerable to overwhelm and won't act normal, and the person I'm touching will know I react and interact differently than normal people. I struggle deeply with monogamous frameworks that indicate certain kinds of touch are ok and others are not. I operate from a consent-based touch framework, but when I’m trying to communicate or receive something by touch I don’t have the additional bandwidth to assess if it’s an acceptable monogamous type of touch or not or to remember other social rules around it other than what the person there with me wants to or is able to engage in.

3h) I learned small-talk when I worked in offices tending plants. I went into roughly a hundred personal office spaces a day, and at first I’d repeat what the person in the previous office had said to the person in the next office. Over time I learned the patterns of small-talk, what was acceptable and what wasn’t, and learned to see it as a signalling process by which people understood whether the other person was safe and interested in speaking more deeply or not. This was a deliberate skill I picked up, though it’s atrophied through disuse lately, and did not come naturally to me.

3i) Developing and maintaining friendships and relationships is tricky for me, because I'm not a good fit with most people in dominant culture. There are very few people I can befriend in a way where I can sharing my feelings and interests comfortably, with whom I can be mutually honest, and who I'm interested in knowing about their lives. I have developed the excellent tool of unmasking/speaking clearly about my interests, desires in interpersonal relationships, and my interest in other people (if I have interest there); this screens people because folks who are uninterested in me quickly wander away, while folks who are interested stay and know I'm interested because I have explicitly said so. So I might say "let's go home and take our clothes off" or "let's go home and snuggle" to someone when I am hanging out with someone and realize I'd like to share touch with them. This is clear, unambiguous, and I used to think it left more space for consent than just trying to hint about going somewhere more comfortable and then tugging around the edge of their shirt or something when we get there. The internet, and internet dating sites, are exceptionally good for clear communication about what I'd like in any kind of relationship, and they allow people who like my candour to opt in.

I really struggle with maintaining friendships. In a lot of ways it seems like I re-initiate friendships with the same people, with breaks in between, rather than "maintianing" them per se. When I'm speaking with someone regularly, their expectation that I'll continue to speak with them becomes a demand, and it becomes more and more difficult and uncomfortable to reach out. I mentioned some strategies above (being friends with people who don't believe I'll continue to be their friend) but as my friends do personal work and develop self-confidence that solution fails, as I still really like those people and want to be close with them but the sense of demand returns.

Maintaining internet friendships, with the ability for asynchronous communication, really helps reduce demands. So does a spontaneous in-person model where certain activities (say, dinner) can be but do not have to be shared on any given day.

Another workaround is to interact with people intensely for a period of time (a couple weeks to several months or even a year) and then have a long period of downtime without much contact, and then to have another period of intensity. I’ve structured my relationship style, solo polyamory, to accommodate this and most of my longstanding friends accept this style of relating from me.

3j) I do not like adjusting my behaviour to social contexts. It feels awkward, deceitful, and invisibilizing. I do it because I have to, and as little as possible.


3k) I like having conversations, as an activity and in alignment with my special interest of learning about people. My other activities are almost entirely solo. I would not enjoy my biggest activity, gardening, with someone else in a collaborative way. I do like showing people the results of my activities, so if someone comes to the farm I’ll take them on chores and show them around, but that’s not the same as collaboratively engaging in the process of making or doing things. I guess generally I don’t mind the role of instructor or learner, but true collaboration is rare and difficult for me for activities? I have one partner with whom I've worked hard to develop activity partnerships and we can now enjoy things like building a shed or cutting down mushroom logs together, but it took maybe four years of friction and active work to get to the point of being comfortable.

It's also tremendously difficult for me to do activities with someone else because of the way my demand avoidance functions. I can do activities solo because I can tell myself I'm getting up to do one thing and actually do something completely different, so I'll get up from the couch to plant bulbs but will actually rototill the garden instead. Doing an activity with another person precludes this; there's so much pressure from planning to do something in advance, then getting together to do it, that I can't actually do the thing at all in the moment. So even if I know people who share interests and we can get aligned on how something would work, someone else's presence almost entirely prevents me doing my activities.

I've found some work-arounds for this: when people come to visit I create a "menu" of activities or projects and we can choose spontaneously from them in the moment, then I can either "teach them how to do it" or "learn how they do it" instead of "doing the thing together" and that seems to help my demand avoidance, because I'm not actually doing the activity. But I still spend a lot more time than I'd like sitting with someone, maybe wanting to experiment with doing an activity with them, but unable to do so even if they suggest it.

I do like spending a lot of time alone or especially in parallel play with trusted people.
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I'm still sitting on my autism screening. This part is a virtual "answer a bunch of questions and do a bunch of questionnaires" and, much like the ADHD screening I posted about recently, I want to answer a lot of the questions with "it depends" and "I need more information" and also "how am I supposed to know that?"

Josh was up last week and he said it's been super helpful for him to know about PDA. He said it gives him a framework for understanding me, my behaviour, and useful behaviours for him to choose. I noticed that this visit felt frictionless (I actually took a second to cry here) in a way that almost never happens for me with other humans. It didn't feel like a tremendous energy drain. It felt energizing and fun. I think that's because he had picked up on some tools to use, like... he'd stand up and say "I'm going to go work on the deck" and I could say "I'll be along in a minute, I'll clean the chimney right next to you" and then he'd go down, and I'd go down a second later and start splitting wood. So he wasn't trying to get me to do anything, just giving me the information (very helpful) and then moving himself to a place where I could choose to do something close by, and in this particular case it didn't matter what. So I announced one thing as a kind of "I'll go down and do something within conversation distance" but then could sidestep my PDA by doing a different ting within conversation distance and it was ok. There were other things we did actively together that also felt pretty smooth. It was really nice. And it was really nice to do things together, to not just talk, to experience Threshold together. It felt like such a connecting visit.

Meanwhile Tucker, who figured out that smoothness early on, has been more open about his feelings and what's going on with him. He brought an interpersonal thing to me that he was proud of the other day, something that involved saying no to someone. I've been watching his ability to make choices evolve over the years, to say yes or no to things, and for him to be actively proud of something and then to tell me about it (and specifically ask me to engage with it on that level) feels kind of world-changing? He couldn't share that stuff with me when everything was self-loathing, but now we can talk a little bit about his decisions and he can let me know what kind of feedback he's looking for. That adds a different kind of smoothness to my interaction with him, one where I'm not guessing what's going on with him all the time because he can tell me. It's lovely.

These are two people who have been working for years to be good communicators with me, and in both cases there are what feel like huge recent breakthroughs.

Meanwhile I have this autism assessment where I'm supposed to communicate something important and central about me, but I can only do it in writing in answer to specific prompts. I've been wanting to feel seen and understood in this assessment, to have it say "these are the ways I'm different" but effectively I'm the person doing the assessment. If I could straight-up answer the questions I wouldn't need an assessment, I'd know, right? The problem is that I don't communicate like other people, that when I use ideas instead of very practical operational data I can't communicate. My abstractions don't translate, and these questions are relatively abstract.

One possible solution is to answer the open-ended questions on here, which is my "communication with humans" mental space. Then maybe if I'm completely wrong in what I think is normal for all the "how do you do x or y different than normal people" someone will catch it.

Hm

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