Autism Assessment: Question 5
Oct. 13th, 2022 10:40 am5. What is your experience with routine? How do you feel about changes and transitions? How do you react if someone alters your routine unexpectedly? Do you ask many questions if it is one of your interests? Do you regularly eat the same food or wear the same clothes?
I have tremendous emotional trouble with changes if I don’t know they are coming. Being able to anticipate them soothes this a great deal. This applies to both big changes like moves or relationship shifts and small changes like cancelling a visit or being given something different-than-expected to eat. I used to think my partners were neglectful or abusive because of the huge volume of pain and distress I felt when plans were altered, but I've since realized that is my own outsized reaction to changes. When I feel I have some control over the change of a plan, or know exactly how it's changing, I am far less distressed. So changing a plan ("I need to cancel tonight") is really difficult, but knowing why ("I'm not feeling like company and need to cancel tonight") and what happens to that plan after it disappears ("so let's skip this hangout" or "let's reschedule for next week") and especially being given some say in the change ("do you have a preference between rescheduling for this week and just doing it some other time") allows me to regulate (finally, after about 25 years of intensive practice). On the other hand I very much welcome the changes of the seasons, which I know will occur eventually, no one has any control over, but which are predictable and patterned. Note that I will react poorly to a change in planned activities even if the change is better for me-- if I was dreading a social event, but it was cancelled, I'd probably still need a bunch of time to recover from that shift instead of being able to smoothly enjoy the freedom of having that time to myself.
I cannot do a regular routine. When something happens weekly or daily it begins to feel like a demand, and both my mind and body act as though there is a physical force-field pushing me away from doing that thing even if I would like to do it. I have finally learned, after 30-plus years, to brush my teeth regularly if I don't think about it and do it as an auxiliary to the rest of my evening stuff (watering plants, dishwasher, watching youtube) but having written this I will definitely struggle the next couple days since those simultaneous activities "invisibilized" it and this writing makes it visible again. I struggle with the fact that work, classes, or social events happen regularly (as described extensively in the relationships section). However, I do like predictability and pattern, so knowing that I will see a partner on average two days a week, but keeping open which days those are, is extremely soothing to me. So I walk a delicate line between wanting some structure, but not enough structure to trigger demand avoidance or a meltdown if the structure breaks down unexpectedly.
I buy many copies of the same pairs of pants, shirts, socks etc at the same time so they’re all similar and I don’t need to think about buying them again and I know they’ll work for my body, I hate when my favourite cut of jeans is changed and I learned to sew so I don't need to accept changes to my favourite t-shirt pattern. However, I also keep a wide range of potential outfits as an aid to conveying a social persona, so that I can communicate with people who might wish to approach me depending on the situation (a slightly quirky outfit may inoculate people to my atypical social behaviour so they find it charming instead of shocking, where a very typical outfit may allow me to blend into the background). I did go through a period where I was unable to wear the same clothes, and had to sew a new outfit every day, but luckily that was short-lived.
I have learned that when a transition occurs that I was not expecting, instead of melting down I can attempt to engage with curiosity. Asking many questions at this time helps me to stabilize and feel more secure in the change or transition, and it also buys me time to regulate before going on to do the thing that changed. In some ways the whole of my world is a single context, and a change to one part of the context "tears" that part out of context, and I need information and integration time to fit the new information into my whole.
As a small example of how I manage transitions, I have a partner with whom I talk on the phone often. We used to have a great deal of trouble ending the conversations, and I'd feel upset after the transition from talking with him to not-talking with him and be nonfunctional for up to an hour or two. I asked him to give me a heads up five minutes before the call would end, which he now does, and that allows me to anticipate the transition and therefore not to be upset by it. After several years of this, sometimes I can even end the conversation without a heads-up, because I know that if I'm struggling with the idea of ending the call, I can ask for the extra five minutes and he'll give it to me. However, if I were to have an extended conversation with someone else, the end of the call would probably still disregulate me.
Another example of how difficulty with transitions impacts my social life is in relationship visits. I often have a partner visit me for a weekend or a full week, since we mostly are long distance, and it takes me from one to three days to fully process the transition from someone being present to someone being far away once they arrive, and again after they leave. Knowing I'm going to struggle with the transition after they leave, I often have a day or two before they go where I also struggle. These struggles look like loss of executive function, inability to regulate emotions, feelings of distress, anxiety, and emotional pain. They exist regardless of whether I'd like to see the partner more than I currently see them-- it is the transition that I struggle with.
A transition with a choice is always easier on me then one without. I spend so much time and energy managing my reaction to demands that when a surprise demand is given to me it can harm those other coping stretegies and everything falls apart. If instead I am given a choice, I am faced with handling the transition but not so much an externally imposed demand.
I have certain flavours that I like regularly (a specific brand of hot pepper) but am unable to eat the same flavours and textures for more than one meal in a row or even sometimes for more than a couple bites in a row. I manage this by making food with lots of texture and flavour, and can get around it by drinking very bland meal drinks that don't register as having either flavour or texture. Eating an entire bowl of oatmeal without putting crunchy sugar or cool liquid milk in it is out of reach for me, for instance.
It's very difficult for me to transition my focus; if I'm engaged in an activity or thought and need to stop and engage in a different activity or thought I will be slow to do so, my memory won't work well, and I'll want to continue the thing I was doing previously. The exception is if one activity or thought naturally leads into another (thinking about red cedars -> thinking about the ice age, or latin names)
I'm not sure what is meant by "do you ask many questions if it is one of your interests"
- If a change in routine occurs I will ask many questions regardless of one of my interests, as described above
-If someone is going to give me any sort of answers about one of my interests, if it's in any way socially appropriate I will ask as many questions as possible about the shared interest, but that doesn't seem to fit into the general thrust of the rest of this question
I have tremendous emotional trouble with changes if I don’t know they are coming. Being able to anticipate them soothes this a great deal. This applies to both big changes like moves or relationship shifts and small changes like cancelling a visit or being given something different-than-expected to eat. I used to think my partners were neglectful or abusive because of the huge volume of pain and distress I felt when plans were altered, but I've since realized that is my own outsized reaction to changes. When I feel I have some control over the change of a plan, or know exactly how it's changing, I am far less distressed. So changing a plan ("I need to cancel tonight") is really difficult, but knowing why ("I'm not feeling like company and need to cancel tonight") and what happens to that plan after it disappears ("so let's skip this hangout" or "let's reschedule for next week") and especially being given some say in the change ("do you have a preference between rescheduling for this week and just doing it some other time") allows me to regulate (finally, after about 25 years of intensive practice). On the other hand I very much welcome the changes of the seasons, which I know will occur eventually, no one has any control over, but which are predictable and patterned. Note that I will react poorly to a change in planned activities even if the change is better for me-- if I was dreading a social event, but it was cancelled, I'd probably still need a bunch of time to recover from that shift instead of being able to smoothly enjoy the freedom of having that time to myself.
I cannot do a regular routine. When something happens weekly or daily it begins to feel like a demand, and both my mind and body act as though there is a physical force-field pushing me away from doing that thing even if I would like to do it. I have finally learned, after 30-plus years, to brush my teeth regularly if I don't think about it and do it as an auxiliary to the rest of my evening stuff (watering plants, dishwasher, watching youtube) but having written this I will definitely struggle the next couple days since those simultaneous activities "invisibilized" it and this writing makes it visible again. I struggle with the fact that work, classes, or social events happen regularly (as described extensively in the relationships section). However, I do like predictability and pattern, so knowing that I will see a partner on average two days a week, but keeping open which days those are, is extremely soothing to me. So I walk a delicate line between wanting some structure, but not enough structure to trigger demand avoidance or a meltdown if the structure breaks down unexpectedly.
I buy many copies of the same pairs of pants, shirts, socks etc at the same time so they’re all similar and I don’t need to think about buying them again and I know they’ll work for my body, I hate when my favourite cut of jeans is changed and I learned to sew so I don't need to accept changes to my favourite t-shirt pattern. However, I also keep a wide range of potential outfits as an aid to conveying a social persona, so that I can communicate with people who might wish to approach me depending on the situation (a slightly quirky outfit may inoculate people to my atypical social behaviour so they find it charming instead of shocking, where a very typical outfit may allow me to blend into the background). I did go through a period where I was unable to wear the same clothes, and had to sew a new outfit every day, but luckily that was short-lived.
I have learned that when a transition occurs that I was not expecting, instead of melting down I can attempt to engage with curiosity. Asking many questions at this time helps me to stabilize and feel more secure in the change or transition, and it also buys me time to regulate before going on to do the thing that changed. In some ways the whole of my world is a single context, and a change to one part of the context "tears" that part out of context, and I need information and integration time to fit the new information into my whole.
As a small example of how I manage transitions, I have a partner with whom I talk on the phone often. We used to have a great deal of trouble ending the conversations, and I'd feel upset after the transition from talking with him to not-talking with him and be nonfunctional for up to an hour or two. I asked him to give me a heads up five minutes before the call would end, which he now does, and that allows me to anticipate the transition and therefore not to be upset by it. After several years of this, sometimes I can even end the conversation without a heads-up, because I know that if I'm struggling with the idea of ending the call, I can ask for the extra five minutes and he'll give it to me. However, if I were to have an extended conversation with someone else, the end of the call would probably still disregulate me.
Another example of how difficulty with transitions impacts my social life is in relationship visits. I often have a partner visit me for a weekend or a full week, since we mostly are long distance, and it takes me from one to three days to fully process the transition from someone being present to someone being far away once they arrive, and again after they leave. Knowing I'm going to struggle with the transition after they leave, I often have a day or two before they go where I also struggle. These struggles look like loss of executive function, inability to regulate emotions, feelings of distress, anxiety, and emotional pain. They exist regardless of whether I'd like to see the partner more than I currently see them-- it is the transition that I struggle with.
A transition with a choice is always easier on me then one without. I spend so much time and energy managing my reaction to demands that when a surprise demand is given to me it can harm those other coping stretegies and everything falls apart. If instead I am given a choice, I am faced with handling the transition but not so much an externally imposed demand.
I have certain flavours that I like regularly (a specific brand of hot pepper) but am unable to eat the same flavours and textures for more than one meal in a row or even sometimes for more than a couple bites in a row. I manage this by making food with lots of texture and flavour, and can get around it by drinking very bland meal drinks that don't register as having either flavour or texture. Eating an entire bowl of oatmeal without putting crunchy sugar or cool liquid milk in it is out of reach for me, for instance.
It's very difficult for me to transition my focus; if I'm engaged in an activity or thought and need to stop and engage in a different activity or thought I will be slow to do so, my memory won't work well, and I'll want to continue the thing I was doing previously. The exception is if one activity or thought naturally leads into another (thinking about red cedars -> thinking about the ice age, or latin names)
I'm not sure what is meant by "do you ask many questions if it is one of your interests"
- If a change in routine occurs I will ask many questions regardless of one of my interests, as described above
-If someone is going to give me any sort of answers about one of my interests, if it's in any way socially appropriate I will ask as many questions as possible about the shared interest, but that doesn't seem to fit into the general thrust of the rest of this question